Ivor

Ivor has Angelman syndrome, a rare genetic condition that affects the nervous system and causes severe physical and learning disabilities.

Ivor's condition affects about one in every 15,000 people and means he needs constant supervision, struggles to sleep through the night, cannot speak, understand the word "no" and is not toilet trained.

"Ivor pinches, he bites and pulls and messes things up... he's not a normal brother," she said, adding her daughters are also his carers and give her "emotional support".

Ivor is now in primary school with his sisters which Sarah said has "helped tremendously" in managing her work and administration of her son's care.

Sarah has scaled back her career as a solicitor to part-time, saying caring for Ivor was a full-time job.